Our son Mana needs your help. Right now, he is in the fight of his life against multiple malignant brain tumors.

Anyone who has met Mana will agree that keeping him here is something worth fighting for.

In July 2022 our lives were turned upside down. Mana collapsed on the beach with a massive seizure that left the right side of his body paralyzed. At the time, he was misdiagnosed with Focal Cortical Dysplasia, a brain abnormality that had supposedly been there since birth. We implemented everything possible to try stop the seizures, but for the next 6 months, Mana continued to suffer daily uncontrolled episodes.

On the 18th of January 2023 we found ourselves back in the emergency room. To our absolute horror an MRI revealed two large masses in Mana’s brain; one the size of a peach and the other a walnut. Tumors, now growing across the surface of our son's brain.

We were immediately rushed into emergency surgery and our little warrior survived over 13 hours in theatre. But even in the hands of our world-class surgeon, only 60% of one mass was able to be removed.

The tumor tissue was sent to the best diagnostic laboratories in the world, with the hope of finally knowing what type of cancer we’re dealing with. But after cross-referencing the genetics and morphological features against the entire Australasian, European and select American databases, there are zero matches to what they are seeing. In true Mana style, this is one of a kind.

In our most recent oncologist meeting, we were told that he has high-grade aggressive brain cancer. It is some form of glioneuronal tumor with genetic mutations usually only seen in glioblastomas. Then to our shock, they said, "without knowing what it is, we cannot responsibly offer you ANYTHING in terms of treatment. We are so sorry we can’t be more helpful…”